Searching the national registry

Researching clinical trials that may be relevant to your condition or that of a loved one can be an overwhelming task. Learn how to navigate the database ClinicalTrials.gov, a registry maintained and supported by the U.S. National Institutes of Health, using the instructions in the tabs below.

Find clinical trials for ALS patients

To search for any ALS study:

  1. Go to https://clinicaltrials.gov
  2. In the “Search for Studies” box, type in “amyotrophic” and click the search button. 
    *Note: searching for “ALS” often brings up broad results (over 700 studies), but searching for “amyotrophic” will quickly direct you to relevant studies (about 300 studies).
  3. Under “List” view, check the “Include only open studies” box.
  4. Click the blue “On a Map” tab and then click on your state to see recruiting ALS studies in your area.
  5. To learn more, click on the name of the study.
    * Read about the purpose and type of study to figure out if you are interested in the study.
    * Look at the inclusion and exclusion criteria to find out if you are eligible for the study.
    * Use the contact information at the bottom of the page to reach out to the study’s research staff.

To search for interventional ALS studies only:

  1. Go to https://clinicaltrials.gov
  2. Under the “Search for Studies” box, click on “Advanced Search”. 
  3. In the “Search Terms” box, type in “amyotrophic”.
  4. Select “Open Studies – Recruiting” from the drop down menu on the “Recruitment” selection line.
  5. On the “Study Type” drop down menu, select “Interventional Studies” and then click the search button.
  6. Click the blue “On a Map” tab and click on your state to see recruiting ALS interventional studies in your area.
  7. To learn more, click on the name of the study.
    * Read about the purpose of the study to figure out if you are interested in the study.
    * Look at the inclusion and exclusion criteria to find out if you are eligible for the study.
    * Use the contact information at the bottom of the page to reach out to the study’s research staff.

Find clinical trials for Alzheimer’s disease patients

To search for any Alzheimer’s disease study:

  1. Go to https://clinicaltrials.gov
  2. In the “Search for Studies” box, type in “alzheimer” and click the search button. 
    Under “List” view, check the “Include only open studies” box.
  3. Click the blue “On a Map” tab and then click on your state to see recruiting Alzheimer’s disease studies in your area.
  4. To learn more, click on the name of the study.
    * Read about the purpose and type of study to figure out if you are interested in the study.
    * Look at the inclusion and exclusion criteria to find out if you are eligible for the study.
    * Use the contact information at the bottom of the page to reach out to the study’s research staff.

To search for interventional Alzheimer’s disease studies:

  1. Go to https://clinicaltrials.gov
  2. Under the “Search for Studies” box, click on “Advanced Search”. 
  3. In the “Search Terms” box, type in “alzheimer”.
  4. Select “Open Studies – Recruiting” from the drop down menu on the “Recruitment” selection line.
  5. On the “Study Type” drop down menu, select “Interventional Studies” and then click the search button.
  6. Click the blue “On a Map” tab and click on your state to see recruiting Alzheimer’s disease interventional studies in your area.
  7. To learn more, click on the name of the study.
    * Read about the purpose of the study to figure out if you are interested in the study.
    * Look at the inclusion and exclusion criteria to find out if you are eligible for the study.
    * Use the contact information at the bottom of the page to reach out to the study’s research staff.

Find clinical trials for PSP patients

To search for any PSP study:

  1. Go to https://clinicaltrials.gov
  2. In the “Search for Studies” box, type in “supranuclear” and click the search button. 
  3. Under “List” view, check the “Include only open studies” box.
  4. Click the blue “On a Map” tab and then click on your state to see recruiting PSP studies in your area.
  5. To learn more, click on the name of the study.
    * Read about the purpose and type of study to figure out if you are interested in the study.
    * Look at the inclusion and exclusion criteria to find out if you are eligible for the study.
    * Use the contact information at the bottom of the page to reach out to the study’s research staff.

To search for interventional PSP studies only:

  1. Go to https://clinicaltrials.gov
  2. Under the “Search for Studies” box, click on “Advanced Search”. 
  3. In the “Search Terms” box, type in “supranuclear”.
  4. Select “Open Studies – Recruiting” from the drop down menu on the “Recruitment” selection line.
  5. On the “Study Type” drop down menu, select “Interventional Studies” and then click the search button.
  6. Click the blue “On a Map” tab and click on your state to see recruiting PSP interventional studies in your area.
  7. To learn more, click on the name of the study.
    * Read about the purpose of the study to figure out if you are interested in the study.
    * Look at the inclusion and exclusion criteria to find out if you are eligible for the study.
    * Use the contact information at the bottom of the page to reach out to the study’s research staff.

Find clinical trials for patients with tauopathies

To search for any tauopathy study:

  1. Go to https://clinicaltrials.gov
  2. In the “Search for Studies” box, type in “tau” and click the search button. 
  3. Under “List” view, check the “Include only open studies” box.
  4. Click the blue “On a Map” tab and then click on your state to see recruiting tauopathy studies in your area.
  5. To learn more, click on the name of the study.
    * Read about the purpose and type of study to figure out if you are interested in the study.
    * Look at the inclusion and exclusion criteria to find out if you are eligible for the study.
    * Use the contact information at the bottom of the page to reach out to the study’s research staff.

To search for interventional tauopathy studies only:

  1. Go to https://clinicaltrials.gov
  2. Under the “Search for Studies” box, click on “Advanced Search”. 
  3. In the “Search Terms” box, type in “tau”.
  4. Select “Open Studies – Recruiting” from the drop down menu on the “Recruitment” selection line.
  5. On the “Study Type” drop down menu, select “Interventional Studies” and then click the search button.
  6. Click the blue “On a Map” tab and click on your state to see recruiting tauopathy interventional studies in your area.
  7. To learn more, click on the name of the study.
    * Read about the purpose of the study to figure out if you are interested in the study.
    * Look at the inclusion and exclusion criteria to find out if you are eligible for the study.
    * Use the contact information at the bottom of the page to reach out to the study’s research staff.